Welcome to the Care and Wellbeing Center (CWC) Resource Guide! Explore below to find comprehensive resources and strengthen your skills to serve people living with HIV over 50. Resources will guide you through key considerations for physical health, mental health, behavioral health, senior services, and more! You will also find previous editions of our newsletter: The Care and Wellbeing Center Chronicle.
Posters & Presentations
Latest Presentation: International AIDS Society 2024
Integrated research, service provision, and system change advocacy is necessary to advancing care for people aging with HIV across the globe. Translational research, implementation science, and programmatic practice allows us to understand care model components, strengths, and growth areas. Read the materials below to gain a comprehensive understanding of HIV and Aging care models, maintaining quality of life, and strategies to maintain functional status for people aging with HIV.
International AIDS Society 2024
Research Paper: Treatment Regimens and Care Models for Older Patients Living with HIV: Are We Doing Enough?
Research Paper: Understanding geriatric models of care for older adults living with HIV: a scoping review and qualitative analysis
US PLWH Caucus Letter: Demanding Better: An HIV Federal Policy Agenda by People Living with HIV
Additional Training: Care and Wellbeing Center Training and Technical Assistance Materials
Maintaining Functional Status and Promoting Quality of Life – by Caitlin Alex Lane, UCSF SRGH Intern
Activities of Daily Living (ADLs), a term created by Sidney Katz in 1950, are categorized into Basic ADLs (BADLs) and Instrumental ADLs (IADLs). BADLs include personal care tasks such as ambulating, feeding, dressing, personal hygiene, continence, and toileting. IADLs, on the other hand, involve more complex tasks such as managing finances, medication, transportation, shopping, meal preparation, housekeeping, and communication. Maintaining holistic functional ability through the effective management of ADLs is vital for ensuring quality of life and independence, particularly among elders with HIV/AIDS.
Assessment tools like the Katz Index of Independence in ADLs evaluate basic activities, while the Lawton IADL Scale assesses more complex, instrumental activities of daily living. Everyone has a role in supporting functional status including:
- Family and friend caregivers have a detailed understanding of the client’s status
- Clinicians and nurses can conduct routine screening, assessments, and help create care plans
- Physical and occupational therapists can provide specific guidance to maintain functional status
UCSF Dept. of Family and Community Medicine Rodnick Colloquium 2024
This workshop highlights our program successes and lessons from 2022-2024. Below are our worksheets to apply strengths-based collaborative learning and community engagement principles. After attending this workshop, learners should be able to:
- Understand interdisciplinary learning and community engagement successes from HIV and Aging
- Apply principles of strength-based collaboration among your team members.
- Examine opportunities to engage community members in your service design, execution, evaluation, and iteration process
United States Conference on HIV/AIDS 2023
A snapshot of our work from 2022 in providing community-informed, intersectional training and technical assistance to HIV and Aging service organizations across the Western U.S.
Current Issue – CWC Chronicle: Issue Twelve
In this issue, we elevate the significance of diversity, equity, inclusion, and belonging while highlighting the aging population. It is crucial to emphasize the importance in advocating for equitable aging services, ensuring every individual, regardless of background, receives proper and respectful care.
Previous Issues:
Issue Eleven
In this issue, we celebrate Black History Month by honoring the life and legacy of Hydeia Broadbent. Through her advocacy for HIV/AIDS, she significantly raised awareness for an often underrepresented population of PLWH, people born with HIV.
Issue Ten
In this issue, we celebrate World AIDS Day by recognizing the strides made towards an equitable future for PLWH while reaffirming our dedication to continuing this journey. We invite you to attend upcoming events for opportunities to stay engaged.
Issue Nine
In the spirit of Pride Month, this edition celebrates the progress we have made in HIV and Aging services. We also celebrate the 40th Anniversary of the Denver Principles. The Denver Principles changed how we conduct medical and social services to best serve and include those living with HIV.
Issue Eight
This edition elevates National Asian and Pacific Islander HIV/AIDS Awareness Day and organizations who are supporting API communities. In addition, we share additional resources from aging services such as the Administration on Community Living and the National Council on Aging.
Issue Seven
Our seventh edition of the CWC Chronicle thanks ROC4Aging+ for their work in the Grantee Action Update series. This series showcased the important work of Gilead HIV Age Positively Initiative grantees. Appropriately, this issue celebrates the progress made in HIV and Aging programs, grantmaking, and comprehensive research efforts.
Issue Six
Our sixth edition celebrates National Native HIV/AIDS Awareness Day and includes literature on trauma-informed care, fall prevention, and culturally-responsive mental health care for faith-based communities.
Issue Five
Our fifth edition brings attention to local efforts to support people aging with HIV and LGBTQ+ communities and the effects of exercise, alcohol, and internal cognitive strengths on the aging process.
Issue Four
Our fourth edition shared a summary of our first year activities, the importance of reframing aging, and new insights on the different lived experiences of aging LGBTQ+ individuals.
Issue Three
Our third edition highlighted celebratory events across the region, the new Challenge Grants to develop programs serving people aging with HIV, and new guides to improve services for older adults.
Issue Two
Our second edition included the new Glasgow Manifesto, community recognition, and numerous articles on clinical considerations for people living with HIV over 50.
Issue One
Our first edition shared news of a multidisciplinary center on aging, efforts to build the healthcare navigator workforce, and a key article on the future of funding for Aging services.
National Women and Girls HIV/AIDS Awareness Day 2023
In this special edition, we shared key considerations for women living with HIV over 50 and resources to build and execute peer programming to reduce stigma in HIV and Aging services.
National Black HIV/AIDS Awareness Day 2023
In this special edition, we highlighted community-driven programming, research, and best practices to develop strengths in Black-centered HIV and Aging services.
HIV and Aging Resources
ROC4Aging+
The Ribbon Organizing Center developed ROC4Aging+, an HIV an Aging technical assistance center. Access their website for HIV and Aging webinars, news, and current efforts for people aging with HIV.
HealthHIV HIV and Aging Webinar Series
HUD’s Office of HIV/AIDS Housing (OHH) sponsored a webinar series focused on HIV and Aging in collaboration with HealthHIV. This webinar series focused on community resources available and/or targeted to aging people with HIV, effective strategies and supports to prevent and address feelings of social isolation and loneliness among people aging with HIV, and frailty and mobility challenges for people aging with HIV.
California Department of Public Health Office of AIDS
The California Department of Public Health – California Planning Group created an HIV and Aging infographic on high-impact topics such as comorbidities, support services, and additional resources. Click the buttons below to access the ADA accessible or print-friendly version.
AIDS Education and Training Center National Coordinating Resource Center
The National Coordinating Resource Center (NCRC) of the AIDS Education and Training Center offers resources, tools, and webinars on a comprehensive range of services for people living with HIV. Use this resource to access the archived materials the NCRC created for adults over 50.
The Well Project
The Well Project is an organization specifically focused on HIV and women. Access this resource to learn more about key topics for women living with HIV who are aging.
TargetHIV – Aging
TargetHIV, a Ryan White technical assistance program, offers webinars, tools, and training materials to develop Ryan White service delivery and operations. Review this resource to learn how to better support Ryan White clients over the age of 50. Some materials available in English, Haitian Creole, and Spanish.
NMAC 50+ Strong and Happy
NMAC’s webinar series, 50+ Strong and Happy, distributes current information on advocacy, research, clinical care, and community perspectives on HIV and Aging. Access this resource to watch their archived sessions and look for future episodes.
American Academy of HIV Medicine – HIV and Aging Initiative
The American Academy of HIV Medicine created a specific course package to strengthen clinical providers’ capability to serve older adults living with HIV. Access this resource to learn more about clinical care ranging from medication management, frailty screening, chronic condition management, and more! Continuing education units available.
SAGE HIV and Aging Policy Action Coalition
SAGE created the HIV and Aging Policy Action Coalition to develop advocacy for long-term survivors and LGBTQ+ older adults living with HIV. Access this resource to learn about policy strategies and opportunities to better serve these communities
National Resource Center on HIV and Aging
GMHC constructed this comprehensive resource center on HIV and Aging geared towards both clients and service providers. Access it to learn about a plethora of physical health, psycho-social services, and community-specific considerations.
Senior Service Resources
Health in Aging Database
Health In Aging is the up-to-date resource created by the American Geriatrics Society’s Health in Aging Foundation. Access this database to search for organizations, services, and resources for older adults and care providers.
Culturally Responsive Resources
The Intersection of Transgender Identities, HIV, and Aging
This article highlights the intersectional experiences of transgender individuals and offers strategies to develop their strengths in the face of multiple societal inequities. Access this resource to learn more about how to support older transgender individuals living with HIV.